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 Details emerge about man who died after MS therapy

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PostSubject: Details emerge about man who died after MS therapy   Fri 19 Nov 2010, 12:01 pm

Details emerge about man who died after MS therapy
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Mahir Mostic travelled to the Clinica Biblica hospital in San Jose, Costa Rica in June, seeking treatment for multiple sclerosis. After his symptoms worsened, the 35-year-old returned to Costa Rica where he died on Oct. 19.
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The Italian surgeon who developed the 'liberation treatment,' Dr. Paolo Zamboni, used balloon angioplasty to open the veins. But, he has discouraged the use of stents. He notes that patients who have stents inserted for other procedures usually require blood thinners and careful monitoring for blood clots afterward.


Updated: Fri Nov. 19 2010 08:04:20

CTV.ca News Staff

Details are now coming to light about the death of an Ontario multiple sclerosis patient who travelled to Costa Rica for a form of the "liberation therapy."

CTV's medical specialist Avis Favaro, who was the first to report on the controversial treatment and the theory behind it, reported on the Niagara Falls, Ont. man's death last week. At the time, the man's family was not yet ready to talk.

But it is now known that the man's name was Mahir Mostic. The 35-year-old had travelled to the Clinica Biblica hospital in San Jose, Costa Rica in June, seeking the controversial treatment. After his MS symptoms worsened, he returned to Costa Rica where he died, on Oct. 19.

The man's death underscores the confusion surrounding the controversial procedure, says an avowed advocate of the procedure.

Barrie Ont.-based vascular surgeon Dr. Sandy McDonald believes in the potential of "liberation therapy," but says the procedure Mostic underwent was very different from the one devised by Italian researcher Dr. Paolo Zamboni.

Based on a hypothesis that MS is a vascular disease caused by blocked or twisted veins in the chest and neck -- a condition he calls CCSVI -- Zamboni's technique uses balloon angioplasty to widen neck veins and increase blood flow from the brain.

After consulting with the doctor who did Mostic's procedure, Dr. McDonald said it was "nowhere near what Dr. Zamboni describes" because doctors inserted into one of the man's veins a stent, which is a small metal tube designed to keep a blocked vein open

"A procedure was done on one day, and the next day they had a sub-optimal result, so they then stented it," McDonald told CTV's Canada AM.

After that appeared to restore Mostic's bloodflow, he was sent back to Canada. But when his symptoms worsened and an ultrasound showed his stent was 80 per cent blocked with a blood clot, he returned to Clinica Biblica in October. A clot-busting drug was injected into the stent, but Mostic died the next day.

Zamboni published his findings in 2009, flying in the face of conventional belief that MS is an autoimmune disorder and giving hope to those who have been told there is no cure. The procedure has not been approved in Canada, leaving people seeking relief both desperate and confused.

"The problem with all of this is that there has not been a good randomized, controlled, double-blinded study that says it's either effective or ineffective. Nor has there been a trial done that assesses what the risks are or aren't," McDonald explained.

Based on advice from the Canadian Institutes of Health Research, and with the support of the MS Society of Canada, Ottawa has announced that it will not fund further clinical trials beyond the ones that are already underway.

Researchers in Canada and the U.S. are nevertheless studying Zamboni's hypothesis -- called chronic cerebro-spinal venous insufficiency, or CCSVI. And Saskatchewan has declared its intention to bankroll clinical trials when researchers are ready.

Between 55,000 and 75,000 Canadians have MS, ranking Canada among the most affected in the world.


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My comments I don't know alot about this. However, I do know someone that went to ( oh my goodness my brain is not working.. dammit) her sister had this done. She paid over 22 thousand dollars. She used a cane to walk. Since her surgery no cane and she was mowing the lawn. Something she hasn't done since she was diagnosed..

So now with this man, dying.. I wonder what the implications of this would be.

Health Canada takes sometimes way too long to approve anything. I understand why and it is to protect Canadians..


However...... I still believe in.. " our bodies... our choice..." if people can and want to afford this- they should be able to. However, on the flip side, what about those that would love to have the chance for this experimental surgery and do not have the funds.

I am on the fence with this one..

Any thoughts
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PostSubject: Re: Details emerge about man who died after MS therapy   Fri 19 Nov 2010, 2:41 pm

I'm with you on our bodies our choice. If people have the means then I say why not try if you want to. Just yesterday on news there was a story on "Health Matters" that there is a new drug with amazing results for state 4 breast cancer and the Province will not pay for it because tis $4000.00 per month. The health minister said he will review the recommendation when it his his desk but further in the report it was stated this had has already been through the ministers office and was denied.
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PostSubject: Re: Details emerge about man who died after MS therapy   Sat 20 Nov 2010, 1:33 am

I think the stents have been shown to be a bad idea. There have been problems.

In terms of the angioplasty to open the veins, I think the feds should do a research study and see what they come up with. If it turns out to be beneficial, it should be offered by the provinces.

Clearly the health care system does not work this way, but I would like to see it go through the process and see what happens. I have a youngish relative with MS, she is not too affected right now but she will be.

If I had MS bad right now, I would try to come up with the cash and get the veins opened. As long as there are no stents, I think the results range from neutral to very good, from what I have read. Has anyone heard of anyone dying after the procedure or otherwise seriously harmed - I mean for the no stent procedure.
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PostSubject: Re: Details emerge about man who died after MS therapy   Sat 20 Nov 2010, 2:27 am

Our bodies our choice,but I to have mixed feeling about the cans and cannots,those that can afford it and those that die because they can't.

Much like the health system here in the U.S. frankly it sucks

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